tag:blogger.com,1999:blog-2691272224916377155.post6994728124424221857..comments2023-04-30T15:50:11.586-07:00Comments on Moving In With Dementia: Do You Know?: 5 Things I Learned From Going Off HospiceRev. Katie Norrishttp://www.blogger.com/profile/02287879898436693836noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2691272224916377155.post-6080063822073839582016-01-17T18:10:46.547-08:002016-01-17T18:10:46.547-08:00Hi Luanne,
Sorry to hear you are going through the...Hi Luanne,<br />Sorry to hear you are going through the this! My mom was taken on and off hospice a few times and she did get worse every time with less care. Then she got into the Navigator program which is run by hospice but you are not on full hospice. You still get the same nurse checking in and some other services. See if your hospice has something like that. It is very expensive to have to pay for all the stuff you used to get on hospice though. My mom lives for thre more years after this blog post. I hope they have an intermediate program for her so you can maintain some quality of care.<br />Blessings,<br />Rev. KatieRev. Katie Norrishttps://www.blogger.com/profile/02287879898436693836noreply@blogger.comtag:blogger.com,1999:blog-2691272224916377155.post-54961430876696439532016-01-17T17:42:50.769-08:002016-01-17T17:42:50.769-08:00Holy cow! I am completely devastated that hospice ...Holy cow! I am completely devastated that hospice is discharging my mom. Her health is actually worse than when she started on hospice six months ago. However, she has stopped declining/stabilized. <br /><br />How long do Alzheimer's patients actually stabilize? My mom no longer remembers the house she used to live in for 40 years and she is incontinent. Some days she can walk; others she can't. <br /><br />I believe she stabilized because of the care that hospice provided, but when they stop the nursing visits, remove her hospital bed, wheelchair, diapers, and shift her meds back to her old primary care physician, I think she will begin to decline again.<br /><br />How long was it before your mom came back on to hospice, or did she? I can't make it without hospice. I can't go back to the midnight phone calls from the assisted living place and the useless trips to the doctor that do nothing but wipe out my mom. However, the doctor has to see her to prescribe meds and he won't come to her. I have until Thursday to work out the details. YIKES!!!Luanne Ohttp://www.blog.luanneoleas.comnoreply@blogger.comtag:blogger.com,1999:blog-2691272224916377155.post-61196043597112766142013-12-09T08:44:33.003-08:002013-12-09T08:44:33.003-08:00This is a wonderful article about what happens whe...This is a wonderful article about what happens when patients are off hospice. It can be a mixed blessing to know you have your loved one for a little while longer, mixed in with the guilt of feeling hassled by all the stuff that now has to be done by the caregiver, when Hospice used to take care of that for you. Many thanks!<br />Anonymoushttps://www.blogger.com/profile/18044544470900518252noreply@blogger.comtag:blogger.com,1999:blog-2691272224916377155.post-21208622730104554242013-08-28T05:49:29.996-07:002013-08-28T05:49:29.996-07:00I recently came across your blog and have been rea...I recently came across your blog and have been reading along.I'm impressed. You're truly well informed and very intelligent. You wrote something that people could understand and made the subject intriguing for everyone. I'm saving this for future use.Elderly Care Atlantahttp://www.choicehomecare.com/noreply@blogger.comtag:blogger.com,1999:blog-2691272224916377155.post-76908904007031693012013-07-19T08:12:40.813-07:002013-07-19T08:12:40.813-07:00Mom's Hospice was an eye-opener -- your writin...Mom's Hospice was an eye-opener -- your writing made me appreciate it even more. <br />My sister-the-nurse communicated the medical needs/services well. My favorite Hospice professional was the social worker -- I'm retired from 40 years of social work myself -- & I NEEDED a lot of help myself. <br /> <br />Now I'm looking for grief therapy work -- hmm. . Sandy King created Working Through Life's Losses in 1996. <br /><br />Hmm again. I've moved 25 miles away from Rocky River, but there's enough daylight to drive home safely after class. Are you meeting this summer? I NEED Zentangles & writing insight & the discipline of classroom exercises!<br /><br />Warm regards,<br />Karen HIATT<br /><br />PS -- thx for sharing your Hospice learning. I didn't think this last year's caring for Mom could get worse -- without Hospice I would have had a really bad time physically & emotionally. Perspective. Hindsight. Time to write thank you notes!Anonymousnoreply@blogger.com